January 31, 2010

Cerebral Palsy and Botox Lawsuit

by Robert D'Iorio

Over the past several years many doctors have used Botox to treat spasticity in patients with cerebral palsy. Recently, however, children with CP have suffered severe side effects and even death as a result of this treatment.

In fact, as many of you recall the FDA ordered a “black Box” warning on Botox due to its off label use for the treatment on individuals with cerebral palsy.

In California last week the family of a child that was given Botox to treat her spasticity and allegedly died as a result filed a medical malpractice lawsuit. The lawsuit states that Kristen Spears’ respiratory system was weakened by the drug which lead to respiratory failure, pneumonia and ultimately her death.

January 27, 2010

Treatment of Spasticity in Patients with Cerebral Palsy

by Robert D'Iorio

The American Academy of Neurology released new practice guidelines on effective treatments of spasticity in patients with cerebral palsy. The guidelines appear in the January 26, 2010 issue of academy's journal, Neurology.

The report list several treatments including Botulinum toxin type A, more commonly known as Botox and/or Dysport, as effective and generally safe to relieve spasticity. As many of you who follow my blog know, however, botox to treat spastisity is what is known as an “off-lable” use because the FDA has not approved botox for the use in treating spasticity in patients with cerebral palsy.

Furthermore, there have been complications and even deaths caused by the use of botox in children with cerebral palsy.

The article also list diazepam or Valium and tizanidine commonly known as Zanaflex or Sirdalud but states these drugs carry a higher risk.

These medications are just guidelines and not intended to be rules. Meaning that these are merely meant to keep neurologist up to date on the current medications used to treat spasticity caused by CP.

Ironically, there has not been a new drug approved by the FDA to treat spasticity in over 10 years.

January 22, 2010

UCPN Polar Bear Plunge

by Robert D'Iorio

On March 7, 2010 the 6th Annual Polar Bear Plunge will be held at Theodore Roosevelt Park in Oyster Bay, New York.

This event will benefit individuals with cerebral palsy. All proceeds go to United Cerebral Palsy of Nassau County.

Everyone is invited and there will be food and music.

For more information on participating or sponsoring please call (516) 378-2000, ext. 648 or visit www.ucpn.org.

January 19, 2010

Umbilical Cord Stem Cells for Cerebral Palsy and Stroke

by Robert D'Iorio

The following video discusses two case studies of children being treated with cord blood stem cells to treat cerebral palsy.

The video explains how cord blood can help children with cerebral palsy, possible side effects and benefits that cord blood offers children with cerebral palsy.

For more information on umbilical cord blood stem cells and cerebral palsy and stroke please type “stem cells” in the search box of this blog.

Please enjoy the video.

January 15, 2010

Assistive Devices for Cerebral Palsy

by Robert D'Iorio

The following video demonstrates assistive devices used by individuals with cerebral palsy during physical therapy.


January 11, 2010

Cerebral Palsy Blog: Eden Little

by Robert D'Iorio

As the New Year begins many of us have already strayed from our New Year’s resolutions.

Here is someone who hasn’t. Meet Eden Little, Eden is a single mother of three children with cerebral palsy. Her New Year’s resolution was to blog everyday (or close to it) about her daily life.

Great work so far and I look forward to reading more of your entries.

For more information on the Little Family and to read Eden’s Blog please visit their website at www.thelittlelife.net

January 8, 2010

What is Cerebral Palsy

by Robert D'Iorio

This is a short video that provides a definition of cerebral palsy, causes of cerebral palsy and much more.