Cerebral Palsy Magazine
I wanted to let everyone know about a great resource for children and adults with cerebral palsy, Cerebral Palsy Magazine. Cerebral Palsy Magazine addresses a variety of issues associated with cerebral palsy.
The magazine comes out quarterly and contains articles written by parents for parents, adults with cerebral palsy, doctors, nurses and many more authorities.
Cerebral Palsy Magazine is the only magazine in the country dedicated exclusively to cerebral palsy. The magazine can be downloaded online, and is offered as a print version and on CD.
Having worked with the people who make the Magazine possible I would like to thank them for all they do; their courtesy, compassion, professionalism and their commitment to the cause create a synergy that makes the Cerebral Palsy Magazine such a great resource.
Thank you and keep up the great work!
Here is a link to their website.
Top U.S. Hospitals
This week U.S. News and World Report released its 2009-10 edition of the best hospitals in the nation.
Here is the link to the top 20.
Also, here is a link to my post last year containing the top pediatric hospitals in the country for conditions such as cerebral palsy and Erb’s palsy.
China Embryonic Stem Cells & Cerebral Palsy
Lately, there has been a lot of news about children receiving embryonic stem cell treatment for cerebral palsy in China.
Here is a link to an article about two families that raised money to take their children both of whom have cerebral palsy to China to receive embryonic stem cell treatment.
The article also briefly touches on the differences between umbilical cord stem cells and embryonic stem cells.
*Please note this is not an endorsement by The Law Offices of Robert A. D’Iorio, PLLC for or against the use of embryonic stem cells in the treatment of cerebral palsy.
Cerebral Palsy Therapy : Nintendo Wii
The Limbs Alive Project recently developed specialized games for Nintendo Wii to benefit children with cerebral palsy. The idea behind the project is to make the children perform tasks while being entertained.
Initial research indicates an increase in coordination in children that use Nintendo Wii as therapy
I think this is a great idea because it lets the children get additional physical therapy while having fun.
New Robotic Therapy for Children with Cerebral Palsy
MIT researchers, lead by Hermano Igo Krebs, have developed a new robotic technology to help children with cerebral palsy. The robotic devices have been in use for several years to assist patients that have suffered a stroke, however, it was not until recently that this new technology was utilized to benefit children with cerebral palsy.
The new robotic therapy is based on the principal that a patient’s brain can establish new connections when the robotic device guides the patient’s body in the proper direction.
The pilot studies show that children with cerebral palsy benefit from the robotic therapy more than adults with the same condition because they are better able to establish new connections.
This looks like a very promising development and a new project is underway to develop an ankle device, as to date, most devices focus on the upper body.
Here is a link to MIT’s website and the full article.
Cerebral Palsy and Donor Cord Blood Stem Cells
The video below contains a brief overview on cord blood stem cells and explains who may benefit from banking cord blood, answering questions such as “what if I didn’t store my child’s cord blood?” and “Can my child use other children’s stored cord blood?”
Please see my earlier posts for a more in-depth look at cord blood and the new treatments for children with cerebral palsy.
Assistive Technology (AT) and Cerebral Palsy
Assistive technology (AT) is a general term that includes assistive, rehabilitative and adaptive devices for people with disabilities.
The following video demonstrates several basic advancements in technology in the class room and out for children with cerebral palsy.
TheraSuit Method and Cerebral Palsy - Part 2
The video below is the second in a two part series of videos discussing TheraSuit therapy. In this clip they discuss all five stages of TheraSuit therapy from the warm up to the last stage. Additionally, the video explains the benefits of the TheraSuit home program for children with cerebral palsy.
Cerebral Palsy and the TheraSuit Method - Part 1
The following video is part 1 of 2 videos discussing TheraSuit therapy. This two part series explains the TheraSuit’s history, benefits, and methods of use for children with cerebral palsy.
Therapies 4 Kids - Intensive Pediatric Therapy and Hyperbaric Oxygen Therapy for Children with Cerebral Palsy
The following is a video discussing Therapies 4 Kids. Therapies 4 Kids is a clinic offering physical therapy, occupational therapy and hyperbaric oxygen therapy for children with cerebral palsy.
Help for Military Parents with Special Needs Children – Cerebral Palsy
STOMP (Specialized Training of Military Parents) is federally funded through a grant from the U.S. Department of Education. The goal of Stomp is to assist Military families find resources for special needs children.
For more information on military and civilian resources please visit our State Resource Guide. The Guide is a one stop guide for resources for children and adults with cerebral palsy in every State.
Cerebral Palsy and Hyperbaric Oxygen Therapy (HBOT) Study Seeking Participants
Scientist at Wright State University's Boonshoft School of Medicine, Kettering Medical Center and Children's Medical Center of Dayton are studying the affects of Hyperbaric Oxygen Therapy (HBOT) on children with spastic cerebral palsy.
This study involves high concentrations of oxygen to be delivered to children with spastic cerebral palsy utilizing a pressurized chamber. The study is being offered at Wright-Patterson Air Force Base and is free to participants as part of a federally funded project.
So far the researchers have studied 48 children; however, they are currently seeking more participants between 3 and 8 years of age.
If you would like more information please contact Connie Bruns at (937) 641-4279 and as always if you have any questions regarding your child please feel free to contact me directly at (888) 456-4658 or Robert@dioriofirm.com
Erb’s Palsy / Brachial Plexus Injury – New Treatment / Surgery
Children's Hospital’s Dr. Gregory Borschel, recently performed a nerve transfer on the brachial plexus of a child. A nerve transfer has been around for several years; however it was not performed on children until recently.
Prior to the nerve transfer, surgeons typically performed what is called a nerve graft on children with brachial plexus injuries. A nerve graft takes healthy nerves from elsewhere in the body and grafts them around the damaged nerves. This procedure has several downsides including leaving a “numb spot” in the location where the nerves were taken for the graft.
The nerve transfer, a six hour microsurgery, involves cutting the crushed nerves that send messages to the arm, hand and shoulder and reconnecting them to an undamaged or healthy, redundant nerve.
Washington University School of Medicine's chief of the division of plastic and reconstructive surgery Dr. Susan Mackinnon called the results “spectacular.”
Cerebral Palsy - Physical Therapy and Therasuit
The following video provided by CP Discovery, discusses physical therapy for children with cerebral palsy.
The video includes topics such as, how long children will need physical therapy, benefits of therapy and goals that can be achieved with therapy.
Hippotherapy Center: Selecting the Right One
This video was made by CP Discovery and explains what to look for when determining which Hippotherapy center is best for your child with cerebral palsy.
Hippotherapy and Cerebral Palsy
The video below, made by CP Discovery takes an in depth look at Hippotherapy and the benefits of horse therapy for children with cerebral palsy.
For more information on Butterfly Dreams Farm in Watkinsville, GA. or Peggy Curran please visit their website www.butterflydreamsfarm.org.
Cord Blood Stem Cells: Can you use someone else’s?
This video explains the benefits of cord blood stem cells for the treatment of cerebral palsy and other disorders as well as answers the question: can you use someone else’s cord blood stem cells if you did not bank your own?
Cerebral Palsy and Cord Blood Stem Cells
The following video depicts the benefits of cord blood stem cells on a little girl with cerebral palsy due to a stroke. A Cord Blood transfusion takes less then an hour and can have immediate benefits. Currently, banking cord blood costs around $2000 up front and $150 per year. Additionally, the ethical and legal issues involved in using embryonic stem cells are bypassed when using cord blood stem cells.
Cerebral Palsy and Hyperbaric Oxygen Treatment (HBOT)
This video describes the benefits of Hyperbaric Oxygen Treatment for children and adults with cerebral palsy and strokes. To find a treatment center in your area please see my previous post.
Cerebral Palsy Risk Reduced in Premature Babies by use of Magnesium Sulfate
The risk of a child developing cerebral palsy may be cut by nearly 50 percent by administering magnesium sulfate to women just before delivery. The reason magnesium sulfate reduces instances of cerebral palsy is currently unknown however, researchers at University of North Carolina (UNC) are currently investigating the link.
This is a crucial finding because magnesium sulfate is inexpensive and readily available at most hospitals. Therefore, it is likely that doctors will be able to administer magnesium sulfate to a significant number of mothers that deliver their child prematurely. Furthermore, doctors could begin using the treatment immediately as FDA approval is not necessary for the use of magnesium sulfate according to Dr. John Thorp, co-author of the study and professor of obstetrics and gynecology at the University of North Carolina at Chapel Hill. Thorp went further to say that “This is one of the most promising breakthroughs in the management of high-risk pregnancies in more than 30 years,”
Below please find a Video from UNC medical center on magnesium sulfate and cerebral palsy.
Lack of Prenatal Care and The Infant Mortality Rate are Examined on “Babyland” on ABC’s 20/20 tonight at 10:00 EST
Lack of prenatal care can lead to devastating results to a child such as cerebral palsy, erb’s palsy, spina bifida or even death. Often these conditions can be avoided with proper prenatal care. Tonights 20/20 will focus on a grassroots campaign to save these children. Although, the doctors treating these children are doing a great service one has to think; wouldn’t it have been so much easier (for everyone) to treat the mothers (that they are able to treat) properly to begin with and avoid this devastating situation?
Stem Cells and Cerebral Palsy
Children's Neurobiological Solutions Foundation CNS Foundation is a national non-profit organization that fosters innovations in brain repair and regeneration for children with cerebral palsy.
Sensory Integration Therapy and Cerebral Palsy
In this video occupational therapist, Jean Davison, discusses Sensory Integration Therapy and explains what it is and the benefits for children with cerebral palsy.
Intensive Suit Therapy (TheraSuit) and Cerebral Palsy
Below please find a video pertaining to TheraSuit therapy and a list of TheraSuit therapy centers.
We are in the beginning stages of compiling a list of specialists that treat children with cerebral palsy. The Following is a list of Intensive Suit Therapy (TheraSuit) Centers.
Therasuit LLC Treatment Center (Pediatric Fitness Center)
2111 Cass Lake Rd. Suite 102
Keego Harbor, MI 48320
248 -706 -1308
Therapies 4 Kids, Inc.
Florida Office - HQ - (888) 490-6611
4001 N. Ocean Drive, Suite 305
Lauderdale by the Sea, FL 33308
New York Office - (800) 617-5474
55 Bryant Ave Suite 6A
Roslyn, NY 11021
New Jersey Office - (800) 617-5474
2200 Route 10 West Suit 160
Parsippany,NJ 07054
Bahrain Office -
Steps Rehab Center
Vila 96 Abu Ghazal
Manama 330 - Bahrain
Kingdom Of Bahrain
www.therapies4kids.com
www.speechtherapies4kids.com
www.therapies4adults.com
www.brightstepsforward.org
954-907-6783 cell
954-241-6726 efax
954-491-6699 office fax
admissions@therapies4kids.com
Continue reading "Intensive Suit Therapy (TheraSuit) and Cerebral Palsy" »
Hippotherapy (Horse) and Cerebral Palsy
The Following list of Hippotherapy Clinical Specialists compiled by the American Hippotherapy Association, Inc.
If you are a specialist and would like to be added to our list please e-mail me your contact information at Robert@dioriofirm.com
The Law Offices of Robert A. D’Iorio, PLLC does not endorse or attest to the competence of any specialist.
HPCS - A therapist who carries the AHCB Board Certification in Hippotherapy. Hippotherapy Clinical Specialists names are followed by 'HPCS' on this list.
Level II Therapist - A therapist who has completed both Level I and II AHA Approved Courses who demonstrates clinical problem solving with respect to clinical reasoning, the Hippotherapy Conceptual Framework and application of the Disablement Model. They have clinical application of NDT, SI and Motor Learning within the hippotherapy treatment strategy.
Level I Therapist - A therapist who has completed the AHA Approved Level I Course who has gained the basic knowledge of the horse's movement and its application to patients with neuromuscular disorders. They have also gained knowledge of horse and patient selection, evaluation, treatment planning and business aspects.
** NARHA Registered Therapist
Alabama
Ellen Davis, OT, HPCS** edavis8836@bellsouth.net
Pelham, AL
Kristye Chastang, PT Level I PKChastang@aol.com
Bay Minette, AL
Alaska
Joann Schnellbaecher, OT** Level II jvschnell@yahoo.com
Anchorage, AK
Continue reading "Hippotherapy (Horse) and Cerebral Palsy" »
Hyperbaric Oxygen Therapy (HBOT) and Cerebral Palsy
We are in the beginning stages of compiling a list of specialists that treat children with cerebral palsy. The Following is a list of Hyperbaric Oxygen Therapy (HBOT) Centers. If you would like your center to be added to the list please e-mail me your contact information and I will add your Center to the list.
The Law Offices of Robert A. D’Iorio, PLLC does not endorse or attest to the competence of any specialist.
Ocean Hyperbaric Neurologic Center
4001 Ocean Drive
Lauderdale-by-the-Sea, FL 33308
Telephone: (800) 552-0255 or
(954) 771-4000 Fax: (954) 776-0670
Website: www.oceanhbo.com
Email: infor@oceanhbo.com
Raymond H. Cralle, RPT
525 N.E. 3rd Avenue
Suite 106
Delray Beach, FL 33444
www.CrallePhysicalTherapy.net
www.ORCCAHBO.com (under construction)
www.HopeSpringsInc.org
Chico Hyperbaric Center
1026 Mangrove Ave., Suite 10
Chico, CA 95926
Telephone: 1-888-324-6240
or (530) 899-9361 Fax: (530) 899-9841
Email: info@HBOToday.com
Hyperbaric Recovery & Rejuvenation Center
1370 Medical Center Drive, Suite C
Rohnert Park, CA 94928
Phone: (707) 584-4325
Fax: (707) 584-7884
Pittsburgh Hyperbaric Institute
533 Washington Ave
Bridgeville, PA 15107
(412) 221-5788
HYPERBARIC SERVICES OF THE PALM BEACHES
Email: OXYGEN4U@BELLSOUTH.NET
Phone: 561-819-6125
Continue reading "Hyperbaric Oxygen Therapy (HBOT) and Cerebral Palsy" »
Audiologists and Cerebral Palsy
We are in the beginning stages of compiling a list of specialists that treat children with cerebral palsy. The Following is a list of Audiologists. If you are an Audiologist that treats children with cerebral palsy and would like to be added to the list please e-mail me your name and contact information and I will add you to the list.
*The Law Offices of Robert A. D’Iorio, PLLC does not endorse or attest to the competence of any specialist.
Academy of Doctors of Audiology
1020 Monarch Street, Suite 300B
Lexington, KY 40513
Phone: (866) 493-5544 (toll free)
Fax: (859) 977-7441
Hearing Health Center (HHC)
Chicago
30 N Michigan Ave.
Suite 1429
Chicago IL 60602
312.263.7171